Dna
My DNA test has been sent in ! Will be getting Finally results on April 18th . My sister will also be getting her DNA results at that time . We will find out together ! GOD help us !
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Results are not in yet ,will receive them April 31st . Oh my , what a wait !! My sister is not getting hers at this time . Will keep posting on results !!
View ArticleDNA test results
Made a mistake , results not in until May 31st . Doctor went on vacation !! Gettin antsy ,want to get this over with . I need to know !!! My sis and brother will be getting the test done in the near...
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My sis came to be with me a couple of days before the results were to be read . For moral support ! And ............. The FIG 4 GENE came back negative . OMG I am positive with the C9orf72 . As I was...
View ArticleMy Family
Thought I would write some about my family . We have Familial (FALS) . My grandfather lost his father and sister . I have lost my grandfather , my uncle , my mom , and my little brother . We are not...
View ArticleOh My !
Have just returned from seeing my doctor again . Needed to hear what he had said when he told me my results of gene testing. Kidda went into a state of shock after being told I have tested positive for...
View ArticleWonderful News !
OMG , I have been choosen to take part in a research study at the National Institutes of Health in Bethesda, MD. In this study ,they would like to understand how symptoms change over time in those like...
View ArticleStessed big time !
Feeling very overwelmed these days . Muscle cramping started in both the legs over a month now . They are consitant now and very intense . Went to my family doctor , she did a blood draw . My magnesem...
View ArticleWhoever said life is fair - I hate that saying !!
Just got back from my sis"s . She has gotten back her test results . She was found to be a carrier of the FIG4 gene ! Her docotor says that gene alone will not cause ALS , So that was the best news...
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